Title: Disease: When Life takes an Unexpected Turn
Author: Hans M. Hirschi
Publisher: Beaten Track Publishing
Release Date: October 26th 2017
Genre(s): LGBT, Romance and Relationships, Contemporary Fiction
Page Count: 196 pages
Reviewed by: Ana
Heat Level: 1 flames out of 5
Rating: 5 stars out of 5
When journalist Hunter MacIntyre is diagnosed with early-onset Alzheimer’s, he realizes that his life is about to change, not to mention that he’s been handed a certain death sentence.
Alzheimer’s is a disease affecting the patient’s loved ones as much, if not more, than the patient themselves. In Hunter’s case, that’s his partner Ethan and their five-year-old daughter Amy. How will they react to, and deal with, Hunter’s changing behavior, his memory lapses, and the consequences for their everyday lives?
Disease is a story of Alzheimer’s, seen through the eyes of one affected family.
This book was magnificent. It is very hard for me to find words that could describe why I loved this book so much. I don’t think there are enough words to make justice to such amazing book, but I guess I could give it a try.
It was beautifully written. I loved the way it was structured. It alternates Ethan and Hunter’s points of view. Ethan’s explaining about what Hunter have written. It also was alternates moments in time helping the reader to understand Hunter’s experiences growing up and adapting to Alzheimer.
It was a very difficult book to read. It was really painful. When I choose a book to read, I seek for one that will make me connect emotions with the main characters and that will make me live experiences I, possibly, will never live. On that terms, this book made a brilliant job. There were moments when I feel I was there. I got so involved in the story so quickly. I could feel the love, the hurt, and the hopelessness. I could feel every single emotion portray by the author. That’s what make it so hard to read, because I could feel the greatest love coming for little actions like lying to Hunter so he doesn’t realized he forgot something. I don’t think there’s another book that made me cry as much as this one.
Another thing that I loved about it was how accurate it was. What is so great about this particular part, is that we are used to see the disease, or at least I am, from the point of view of an outsider. As something affecting others and never us or our family, in the better cases. The book make the reader see things from the person living with Alzheimer’s point of view and his family. What it means to get the disease, what it means for his family and the pain they will live, how it will affect the way people will see him, how will affect the ability to be who he is. It was very enlightening.
It was so sad for me to realize that, when the book was a little advance, I was expecting Ethan’s response to Hunter’s comments every time he write something, to see if it was true. It was fantastic to see how things were gradually changing, but I realized I mirrored the response he got from the doctors when he talk about how they react to his and Ethan’s presence. It make me wonder if I do the same with people I meet with Alzheimer and I hope it’ll help me be more human and more self-conscious about the way I treat them.
I don’t think there was a thing about the book I didn’t like, sure it was full of angst, but it was also full of love. I think, beside the disease itself, the most important subject show the book was the love.
The cover artist made a great job to capture the essence of the book. I loved it. I know there are readers who don’t like books with angst and I understand it. But I highly recommend it to anyone, not because of the angst that might have, but because of the human elements it has. It was truly a beautifully written book.